In The rhetoric and reality of e-health: a critical assessment of the benefits of e-health in primary health care a couple or three questions arise re expectations of consumers and the reality of the NEHR interface.
1. It’s likely the Review will recommend building trust by using specific types of health care where early results can be displayed. One of these is cancer care, as in “online support may be useful for people caring for their relatives who have cancer, and also discusses the difficulties that can be faced when recruiting for such studies.”
Consumers may find gaps in credibility & trust, if enrolment in on-line cancer care does not allow transparent access to
- Cancer registries
- All costs
- the fate of trials, and an assurance that all trials will be published
2. Why should private companies know more than the NEHR about ourselves?
- Woolies knows when I buy Tim-Tams, so if I weigh 125kg, shouldn’t that flow through to an alert?
- Woolies knows when I buy alcohol, so if I am pregnant, shouldn’t that flow through to an alert?http://battellemedia.com/archives/2013/11/why-the-banner-ad-is-heroic-and-adtech-is-our-greatest-technology-artifact.php
this is the infrastructure that allows a pair of shoes to chase you across the web. How can it possibly be as important as, say, a technology that may cure cancer? Because I believe the very same technologies we’ve built to serve real time, data-driven advertising will soon be re-purposed across nearly every segment of our society.
3. User interfaces are improving & are designed to attract more views and interaction. A pregnant woman may put daily records on FB, she may learn from peers about better health choices, eg, eating more broccoli. Commercial websites are personalised, to allow personalised messages to be sent to individual users. The gap is widening, users’ interest in NEHR will decline.
Eliz Elliott on EtOH in pregnancy. What’s likely to be more effective?
- Commercial media – print/web/TV
- PcEHR
- Social media like FB?
Highly socialised women will recruit others more successfully. Like, “How I stopped drinking while pregnant” will pull others in.
All (paid) women journos are conflicted – ask them what they think about the “no alcohol” advice, and how they ignored it.
4. Partners in Recovery as target for assessment of Medicare Locals?
- PIR organisations in Vic include Northern Melbourne Medicare Local consortium, which includes three Area Mental Health Services. Do these AMHSs “talk” to each other through their IT systems? If not, hardly seems likely that another layer of supervision will improve coordination.
- Looks like there’s barely (or zero) mention of IT, let alone NEHR. Could ask Siggins Miller Consultants about that.
..Government puts key talks on health reform on hold for six months ..